Global Lung Health Organizations Team Up for Inaugural World Bronchiectasis Day

Newswise – January 24, 2022 – Global lung health organizations from the United States, Europe, Australia and Asia come together to announce the declaration of world bronchiectasis day on July 1, 2022, to raise awareness about bronchiectasis and its increased prevalence in many countries.

Bronchiectasis is a lung disease that affects hundreds of thousands of people worldwide. It is characterized by enlarged or scarred airways that cannot clear mucus properly, leading to recurrent lung infections. Bronchiectasis creates a significant burden for patients and their families. This can lead to accelerated loss of lung function leading to long term disability and premature death. The disease can occur at any age, although most people are diagnosed later in life. Although there is currently no cure, early detection and treatment of bronchiectasis can improve quality of life and impact longevity for those affected. Although bronchiectasis is often referred to as a rare disease, its prevalence is increasing worldwide.

” Supporting world bronchiectasis day, global partners are committed to addressing the critical unmet needs of the bronchiectasis lung disease community,” said Ruth Tal-Singer, PhD, President and Chief Scientific Officer of the COPD Foundation.

world bronchiectasis day is organized by an international planning committee co-chaired by Tim Aksamit, MD, Medical Director, Bronchiectasis and NTM 360 at the COPD Foundation, and Professor James Chalmers, EMBARC Chair and British Lung Foundation Chair of Respiratory Research, University of Dundee. Representatives of global patient advocacy organizations and professional societies sit on the organizing committee.

The first global organizations to join World Bronchiectasis Day include:

“Bronchiectasis is a neglected disease, and lack of awareness causes difficulty and distress for many patients,” said Professor James Chalmers. “We have made great progress over the past 10 years, but there is still a lot to do in research and awareness of the disease. We support world bronchiectasis day as part of our ongoing engagement with global partners to fight this neglected disease.

Lynn Schnapp, MD, president of the American Thoracic Society, added, “Currently, in approximately 40% of cases, the cause of bronchiectasis is unknown. It’s 40% too much. Our patients deserve better. By partnering with other global companies, we intend to amplify awareness around this disease to improve the lives of patients around the world.

“We are excited to work with other leading global lung health organizations as part of world bronchiectasis day to raise awareness of bronchiectasis worldwide,” said Associate Professor Lucy Morgan, Chair of the Lung Foundation Australia Board and Chair of the Australian Bronchiectasis Registry. “We are also committed to better understanding the impact of bronchiectasis on adults and children in Australia while working to improve their quality of life and equitable access to evidence-based therapies,” she said. added.

Watch these first-hand stories of people and families living with bronchiectasis. Visit the European Lung Foundation.

Find out more about bronchiectasis, events leading up to and on July 1, a list of collaborating organizations and information about support at the annual world bronchiectasis day, visit worldbronchiectasisday.org.

About World Bronchiectasis Day

World Bronchiectasis Day, July 1, 2022, aims to raise awareness about bronchiectasis around the world and help people with the disease and others who have not yet been diagnosed through education, advocacy and a global conversation focused on reducing the burden of bronchiectasis for patients and their families worldwide. Learn more by visiting worldbronchiectasisday.org.

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